Finally some good news (tentative)

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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kissygoose

Finally some good news (tentative)

Post by kissygoose »

I filed for both state and federal disability. Haven't heard from Federal yet and originally got a denial notice from state but not all is lost. Part of the paperwork state sent me was a one page document for my physician to fill out. It basically just asks whether I'm permanently disabled, temporarily disabled, or not disabled. I never in a million years thought that he would mark it permanent but HE DID!!!. Because of that little document and the fact that I am applying for SSDI I qualify for my state's medical card. This will allow me to go see Dr. Addelson (I think gotta check and see if he takes it). And I'm not sure on this point but I think because I'm getting state assistance they actually have a department that helps you work with the Federal to get SSDI. I have to call about that today but if they do that would be a boon as well. I still have to wait for the final conformation from the state but it looks good. This means I can start going back to PT as well as the state will cover what my insurance doesn't including co-pays.
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Finally some good news (tentative)

Post by brandonsmom »

Wow, that is awesome news...persistance pays off ! Gayle
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Finally some good news (tentative)

Post by Kath »

Kissy
Check out this policy change for disability...
https://s044a90.ssa.gov/apps10/POMS.NSF/lnx/0424580030

This is great news lets hope it all works out and don't give up. When the doctor writes his reason for disability he needs to give a very clear picture of your disability.

Kath (robpi/adult)
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Finally some good news (tentative)

Post by Carolyn J »

Persistance does eventually pay off.Keep on keeping on,Christina.
Hugs,
Carolyn J
Carolyn J
Adult LOBPI
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