Cara -
I've heard several times about fever's making these shocks worse. Who knows why, but it seems fairly common. In fact, when my son says his arm is shocking him, I take his temp. It's my warning sign. It's how I knew he was getting strep throat the night before we left on vacation!
"Static" in her arm
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Re:
Marlyn
I can't believe it! When this happens to me I want someone to rub my upper arm and put pressure quickly... hmmm that is interesting.
I will tap up and down my arm when I am sitting.
It is an unconscious thing, I don't even realize I am doing it.
I guess I must be uncomfortable and that is soothing.
Most adults, I have spoken to, don't like anyone to touch their arm.
I get a pain sensation from simple touch.
I drove my mother crazy when I was little because I would hit other children if they touched my arm or or my right scapular.
I would get angry and say they hurt me.
She could not explain to me that they just touched me. It hurt...
Now, I fight with my husband if he taps me when we are talking...
He is better about it now that he realizes my brain is getting the wrong message, a pain signal.
Kath (adult/robpi)
I can't believe it! When this happens to me I want someone to rub my upper arm and put pressure quickly... hmmm that is interesting.
I will tap up and down my arm when I am sitting.
It is an unconscious thing, I don't even realize I am doing it.
I guess I must be uncomfortable and that is soothing.
Most adults, I have spoken to, don't like anyone to touch their arm.
I get a pain sensation from simple touch.
I drove my mother crazy when I was little because I would hit other children if they touched my arm or or my right scapular.
I would get angry and say they hurt me.
She could not explain to me that they just touched me. It hurt...
Now, I fight with my husband if he taps me when we are talking...
He is better about it now that he realizes my brain is getting the wrong message, a pain signal.
Kath (adult/robpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re:
I get a sudden shock feeling also. I have for as long as I can remember. Usually I get between 2 and 6 in a row and then they go away and I some times wont have this feeling again for months and other times it could be again the same day. When this happens to me my first instinct is to grab my arm tightly and hold it. Or hold my breath.
So far my only problem with others is when they playfully hit my right arm or scapula, that hurts like crazy and they dont believe me when I tell them how much it hurt, or when I get upset from just them being playful. Sensation is a funny thing.
Amy 18 ROBPI from MN
So far my only problem with others is when they playfully hit my right arm or scapula, that hurts like crazy and they dont believe me when I tell them how much it hurt, or when I get upset from just them being playful. Sensation is a funny thing.
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
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brandonsmom
- Posts: 1401
- Joined: Mon Nov 22, 2004 4:43 pm
Re: Re:
Marlyn,
Try something warm and see if that helps. Be careful that it is not too warm though. My son did the same thing when we moved to Illinois and wasn't used to the cold nights. It is sad when the kids cannot explain what hurts them. I can't tell you anything else. Iwould try and experiment with what helps the most !!1 Gayle
Try something warm and see if that helps. Be careful that it is not too warm though. My son did the same thing when we moved to Illinois and wasn't used to the cold nights. It is sad when the kids cannot explain what hurts them. I can't tell you anything else. Iwould try and experiment with what helps the most !!1 Gayle