Getting dissability ?

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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kissygoose

Getting dissability ?

Post by kissygoose »

Well, today I asked the PT the 64 thousand dollar question. Will I ever be able to go back to work. His answer....50/50. Well that tells me a lot. My DH is pushing for me to sign up for dissability but I seriously don't think it's going to work. I'm not sure how much my therapist is willing to help either because he doesn't know much about that stuff and the therapist there that has a BPI doesn't exactly beleive in the secondary issues and pain since he's never suffered it (he says he works out religiously and that has helped him). I'm still fighting to see a dr. that knows what's going on but not with much success. My therapist even asked if there was a shot or something I could get since he knows how much pain I'm having. I'm feeling very discouraged today.

So tell me about your dissability struggles?
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Getting dissability ?

Post by Kath »

I filed for disability finally and I got it.
I had to write a very long explanation but I did it!

I had to really present a full picture of this injury has impacted me and my body.
First of all how can he say that there are no secondary issues.
Just because he does not have them does not mean you can't.
Each injury is different and therefore it causes us to compensate in a different way.
If a person can only use one side of their body they will abuse it and over use.

I will write to you about it...
You need to have medical documentation.
It's time for your doctor to order some testing.
You also must request copies of all tests preformed on you over the last few years.


Kath (robpi/adult)
Kath robpi/adult

Kathleen Mallozzi
Beckyerin
Posts: 104
Joined: Wed Aug 17, 2005 8:06 pm

Re: Getting dissability ?

Post by Beckyerin »

Kissygoose,
I can't help you with dissability but have you tried to see an upper extremity specialist? I saw my BPI doctor today and he is referring me to a upper extremity guy. These guys only deal with arms, shoulders, and hands. While they may not be BPI specialists they deal with all kinds of injuries to this area of the body and may be of some help.
Becky
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Getting dissability ?

Post by admin »

I am 45 y/o and have never had the use of my left upper extremity. I have been on disability for about 5 years. It turns out that my arm itself didn't qualify me, but depression did. Of course a good deal of the depression can probably be traced back to the arm. The one thing I have learned about disability is if you are denied and you really feel you are disabled and can't work, do not give up. Appeal, Appeal, Appeal. Many people aren't approved the 1st time around and I've been told lawyers do help.
Good Luck.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Getting dissability ?

Post by admin »

The question I have is, has anyone on disability had a settlement that they were told was going to have to be used up first before getting any type of disability? I was once told that I would not be able to get any disability because I settled a lawsuit in conjunction to my ORBPI. So no I dont know if I should try for disability because I was already denied before I even had a settlement from my law suit
kissygoose

Re: Getting dissability ?

Post by kissygoose »

Sunny? How did the depression thing work with the Erbs. I have clinical depression but I was under the assumption that you had to be bi-polar to qualify under.
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Getting dissability ?

Post by Carolyn J »

Hello all,
I'd like to share at this time that Clinical Depression finally qualified me for Disability at age 60(I hope no one else has to wait that long!!!). And yes, a lifetime of hurt and little[read no]support built up and it IS BPI related--a "Secondary Injury". I recieved confirmation of it from a medical source(BPI related). Also in the Medical Resources Link on UBPN there is a good medical article under the title "Adult Lifetime Care Isssues" relating to OBPI, has a statement re BPI & Depression...That reaffirmed it for me & I hope others too.
Hugs all around & Camp 2007 or Bust!,
Carolyn J
Adult OBPI
Carolyn J
Adult LOBPI
sunny
Posts: 12
Joined: Tue Jan 10, 2006 1:41 pm

Re: Getting dissability ?

Post by sunny »

You don't have to be bi-polar to be disabled under depression. The Erb's caused alot of self esteem issues and abuse issues from child hood. I also have extreme anxiety and panic attacks. Without going into too much detail or making myself sound pathetic, I honestly can't go out into the average everyday world around people and function properly. I can't swear that the depression would not have happened without the birth injury, but I do know growing up "differant" certainly didn't help. I also think it contributed to my eating disorders, diabetes, heart disease and spinal problems. I believe the physical pain and organic health problems disable me more - but if the feds want to say its the depression part that disables me most- that's fine too as long as the understand I am unable to work and support myself anymore. While I can "talk" to people and have friendships on line - I just can't do it in person. I freeze up and want to hide like an ostrich in person. I hope this confession doesn't make yall want to ignore me.
sunny
Posts: 12
Joined: Tue Jan 10, 2006 1:41 pm

Re: Getting dissability ?

Post by sunny »

Social security disability is not based on financial need. It is based solely on whether or not you can work. A law suit settlement should not effect if you qualify or not. Keep fighting and get a social security disability lawyer if you have to. Good luck.

-Sunny
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Getting dissability ?

Post by Carolyn J »

Sunny, I just want to add, and validate everything you've shared about the ravages of Depression and our OBPI.Depression itself has physical pain attached to it so when compounded by our BPI pain it is a "DOUBLE WHAMMY"...I too, don't wish to elaborate to gross people out, but the reality of the disabling effects on me , you and others is stark. AT ANY AGE, any one of us adults with OBPI can qualify for Disability. Please do not be ashamed or to proud to reach out for help,UBPN Family. Love ya'....
Hugs,
Carolyn J
LOBPI, age 67
Carolyn J
Adult LOBPI
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