Update

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Update

Post by hope16_05 »

Hello Every one! It has been a while since I have updated you all so if you want I posted my update on my web site www.freewebs.com/bpimn
it is under my current journal page!
Amy 18 ROBPI from MN
Enjoy.
Any update from any one else, I would love to hear them!!!
Amy 28 years old ROBPI from MN
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Update

Post by Kath »

Thanks Amy
I will be looking at in a bit.
Nice to see you posting.
I hope school is going well.
Kath adult/robpi
Kath robpi/adult

Kathleen Mallozzi
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Update

Post by Kath »

I could not get to the current journal because my computer is acting up. The link on your website would not come up for me... I will check tomorrow.

Kath ( adult/obpi)
Kath robpi/adult

Kathleen Mallozzi
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Update

Post by hope16_05 »

Thats not good, if it still does not work tomarrow let me know it might be a site problem.
I "lost" my computer for a few days and befor ethat I was busy with school.
When I say lost I mean I had to get it fixed because it was not working and I turned in two papers late because of it. So it cost me $150.00 to fix my computer this weekend.

On the plus side it works great now and scholl is going very well.

Hugs!
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Update

Post by Carolyn J »

Hugs back to you,Amy. Thanks for the heads up on your update. It is a Joy and a Privledge to be able to follow your journey AND you are such an inspiration to our BPI teens.
Keep up the good work.
Camp 2007 or bust!!
Hugs,
Carolyn J
PS...it's great to have your picture from Camp 2005 when I talk about you....are your ears burning??...LOL
Carolyn J
Adult LOBPI
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Update

Post by Carolyn J »

OH OH Amy, can't get to your web site this morning too like Kath yesterday. I believe you shoud check with the site....
Hugs,
Carolyn J
Carolyn J
Adult LOBPI
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Update

Post by hope16_05 »

Here is the direct link, maybe this will help.
http://www.freewebs.com/bpimn/currentjournal.htm
The site works for me so I am not sure what is going on. There may be site problems though because my chat would not show up yesterday, so who knows.

Carolyn,
It is nice to hear from you and I also enjoy your photo from camp. It is very nice to have faces to names.

Talk to you soon.
Hugs,
Amy
Amy 28 years old ROBPI from MN
Karen McClune
Posts: 746
Joined: Wed Sep 10, 2003 4:58 pm

Re: Update

Post by Karen McClune »

Amy,

Thanks for keeping us informed on all you are doing and how college is going.

It is always so great to hear from you.

Keep up the great work.

Hugs, Karen

Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Update

Post by Kath »

Yeah! Amy I am so happy to see you are doing so well.
I think it's great that you are keeping a journal.
You will really appreciate your progress when you look back on this years from now.

Thanks for sharing it with us.

Kath ( adult/robpi )
Kath robpi/adult

Kathleen Mallozzi
Angela Butterfly
Posts: 483
Joined: Fri Jul 18, 2003 4:24 pm

Re: Update

Post by Angela Butterfly »

Hi Amy, I just read your web page. Amazing. I am so glad you went into the details of your life and surgeries from birth forward. You did it in such a clear and concise way.
You are almost the same age as my Jill 21 severe LOBPI....however YOU had surgery, and Jill was considered BEYOND surgery. When I read what you wrote it seems your injury was severe too.

Most of all I LOVE your ATTITUDE and resceliance (SP?). I am so in your corner. YOU GO GIRL. Angela
Locked