AZ confusion

[rob4spirit]

Hi! I have had BP with either CPRS I or II in my left arm and hand for about 7 months now. (Eeek! I know!) I had been going to a neurologist at the VA hospital, but became sooo frusterated with their incompetance, that I am attempting to seek out specialists.

That is where the madness comes into play. I have not been able to find 1 specialist, nor 1 active support group. I have aggrevated knee and back conditions, so I'm unable to sit all day at the computer to find answers.

So, I come to you, looking for answers, looking for suggestions, looking for ANYTHING! At this point, I still don't even know if I need a neuroligist, or a hand/arm orthopedic. If any of you are from AZ, I would highly appreciate ANY local info. To the others, I ask that you help me onto the right path.

Thanks,

Rob

[rob4spirit]

I've talked to Lori, but she stated that the "group" function in Scottsdale is almost exclusively for those who has BP from birth. I am 35, and have had it for 7 months. I know that U of A is has a good medical school, do you know if they cover BP? Where have you been going? Do you knowof any support groups down there?

Any info would be highly appreciated! Thanks!

[Danzia]

Hi Rob,
I also have a left tbpi with rsd type ii (causalgia) in my left arm. it took 4 1/2 years for me to be diagnosed with rsd as my tbpi was hiding it.

in terms of doctors, i have a neurologist for my bpi, an rsd specialist managing my rsd, and a pain doc when i need any kind of nerve blocks.

i know how completely horrible it is to not only have a bpi but the rsd as well. please feel free to email me at ladydanzia@purplechristel.com if you ever need to talk.

there is a great rsd website: www.rsdsa.org. i found my rsd specialist there, and one of the folks at the rsdsa also use him.
all the best,
gillian