Pain and OBPI

[bugsntazz]

Thanks for sharing this. I am glad that you are ok now. I know exactly what you mean by scary. My son who is LBPI is now 7. He has a very high pain tolerance and I have seen this. Luckily, I have come to realize this and we go to the DR. quite frequently. Here are a couple of examples. Last Feb, my son fell at sunday school. The teachers told me that he cried alittle but then went to play. He came home and did not complain about anything. The next day, we noticed his collar bone had moved 2 inches. He complained of "slight" pain when he lifted his arm. Well we took him to specialists, he had a grade 2 ACL shoulder seperation. The BPI doctor told us that these type of injuries are seen in atheletes and are very painful. After more tests, we found out that he also tore some scar tissue.

Example 2, At age 4, he got a couple of sinus infections. His ENT did a cat scan. He called us the same day, told us that he had all 4 cavities infected and adnoids needed to come out. The dr. said his cat looked as if he had a severe sinus infection for many years. Honestly, he only had 2 infections but alot of ear infections. Well the night before his adnoid surgery, fluid starting to drain out of his ear. He was not in any pain at all. I called the Dr. and he told me that he would look at his ear in the morning when he was under anthestia. He said that if he ruptured his ear that he would be sreaming. After the surgery, the Dr. told us that he was glad he added the ear examine, he did rupture his eardrum and needed one stitch inside his ear. Again he did not complain of any pain.

Fevors - once they get above 103 then he is very lethargic. Below 103 you can hardly tell he has a fever.

Be careful about strep throat - last year he got strep. He has had strep a couple times before but this time it was a very different strep. He started with a rapid rising fever and weakness. No throat, no cough. I took him to Dr. on Monday night, they did not want to do strep test but I requested. Sure enough he had strep. They put him on amoxicillian said he should be better after two doses. At night, his fever got to 105. After three days on amoxicillin he was not better, fever never broke, spiked at night one night he got to 106. He was very weak looking. Took him back to the Dr. Now, after 48 hours on antobitics you should not be contagious anymore. They did antoher throat culture and he was positive for strep still. His Dr. told me that there were 4 other kids like my son. The amoxicillian was not working on all 4 kids. Two kids ended up in the hospital. His peditrician told me that she has never seen where strep was resistant to penicillian. With my son, at Day 3 still high fevor, dehydrated, and lost 5 pounds, she put him on the highest dose children are allowed to have of Eurithmycian. She told us to come back on Friday (day 5) if he had not improved. Friday, still hi fevor 104, 105, childrens motrin working less hours, back to Dr. This time they tested his blood and throat for strep. He tested negative for strep in his throat but positive in his blood. He looked a little better then on Wed, so we had the agreement that if his fever did not break by Sunday, then we would have to put him in the hospital. She wanted to give few more days for the Eurithomycian to work. Thankfully, Sunday morning his fever broke and never came back.

Sorry so long but thought it was important to share after reading the posts. Again thanks for sharing and very glad to hear that you are ok now.

[admin]

Nancy, I hated to hear youve been sick. I hope you get to feeling better real soon. You have been missed around here. Thanks for posting this, its something that maybe we can learn from as well. This injury is different, yet so much the same at one point or another with everyone. Im finding out James must have a high tolerance with pain too, then again sometimes he dont, its hard to tell where things are coming from sometimes. He wont complain with pain, but when he does, I know it must be really bad. Its just difficult all the way around.

[Carolyn J]

I'm so sorry Nancy that you had this "attack". Thank you so much for reminding everyone about the dangers of a high threshold for pain. This is very important to be always vigilant. I believe it may help me to print out this thread and have it handy if I ever need to go to the ER and I also will request this to be put in my medical records which are now all on computer at my Medical Care Center which is available to all satellite 24hr. Urgent Care Clinics in our county area.[reason why I've picked a Dr. in their system].
Extra hugs for you Nancy,
Carolyn J

[Kath]

It is so hard for us to complain. Pain is just something we adjusted to.
I have an earache for almost a week because of this post I went to the doctor.
My right ear is full of fluid... I am not sick and told them I had a minor ear ache...
But all sounds drive me crazy and my ear is crackling.... They told me to come right in. Of course it's only on the bpi side.
I have not had and earache since I was a kid.
Thanks Nancy for reminding me that the pain I feel could be a sign of something really wrong.... even my lymph nodes are swollen.
I kept thinking it did not hurt enough to go to the doctor.
Kath adult/robpi

[Angela Butterfly]

Dear Nancy, WOW. I do hope you are feeling better. Is this something that will always be coming back? I hope not.
Wishing you better days ahead. Angela

[FullofFaith]

Hope your feeling better Nancy!!!

Kath and Nancy, you all hit right on the head. We are so "programmed" or "adjusted" to pain that we don't complain we just accept it as normal.

Great Post Nancy!!!
Tracy