<t>Jacob's left BPI get's better every month. Since his third nerve grafting 18 months ago there has been pretty good progress. He can feed himself, put his fingers in his ears and is in his naked phase and good at taking his clothes off. Now only if he can get better at putting them on. He is in pr...

<t>We were wondering if anyone has any tips/suggestions for potty training OBPI kids- especially dealing with pulling pants up/down. Our son is 2 1/2 years old LOBPI and we are running into difficulties (as many BPI kids and adults do) with self-care, especially with pulling pants on and off. Even t...

<t>Without going into detail and without dropping names we were sent to a different set of doctors for an independent medical evaluation. We felt the doctors were very conservative in their methodology and they really left us feeling unsure of what the future course of treatment will be for our son....

<t>Trent Jaxson Dubois came into this world on 29 Dec. 05 at 5:01 PM Via c-section and without complication. He weighed in at 7.8 lbs. Mother and baby are doing fine. <br/> <br/> He had a heel stick this afternoon and we just took the bandaid off 9 hours later and it started bleeding again. Has this...

<t>26 month old 3 primary surgeries Lobpi. We have been using TES for awhile now. We do not like using it at night because of the wires. It just doesn't seem safe. Anyway does anyone use TES during the day only and is this OK?<br/> <br/> The other issue is being that he is 2 he has major issues with...

<t>We will be at TCH for Jake's surgery on the 5th. He is having the MOD. We usually stay at the holiday Inn. We would like to meet others also. I have to say that everytime we have been to TCH and met other people it has comforted me to see other people in the same boat. Look forward to seeing you ...

Hello I replied to your listed e-mail.

<t>Well we are scheduled for MQ on the 5th of April. Dr. Nath also requested a 3-D cat scan. He also mentioned that they are going to inject Botox into Jake's triceps. I am wondering if and looking for comments about this process. They might do it during surgery. I am wondering if anyone else will b...

<t>We were there last week too. I saw it on the hype for the superbowl. It was as francine said. It was expensive and we did eat there. But the food was good. Ther aquarium was cool and Jake was impressed.<br/> In one section there are two huge Parrots that screech something aweful. Jake just about ...

<t>You are not alone. I am a SFC in the Army and my son has a lobpi. It is sometimes difficult to tell the doctors that what they are doing is not enough and that you need a referral to a specialist. If you click on my screen name it will give you my e-mail address. Please e-mail me and I will give ...