<t>I am 4 '11 and 3/4 my first son was 8 lbs 1/2 oz (bad labor but no injury) sencond son was 8 lbs 12 oz he has ROBI. This all just makes me go hmmmm! All the older women in my life that had children of their own kept saying you are too big. The medical side just kept saying your fine everything is...

<t>I wanted to bring this back up the top for two reasons. My son's annual review is coming up and I benefitted from all the information I received last time I posted. Secondly, this is a hot subject and the information shared can benefit so many of us! Please share your latest IEP/Services experien...

<r>Yes, Yes, Yes we will be in Texas the 11th our son 3 and half years is scheduled for mod/quad surgery that day too! I had hoped I would have a contact with another family before going. We have an evaluation scheduled on the 9th but expect the surgery on the 11th. We arrive late the 7th. Please fe...

<t>You need to read or get a copy of your rights as a parent. If they do not provide you a copy of these at your meeting request one. If you do not agree with what they suggest just state that. Then state you need time to go over their suggestions and you will respond to them as soon as you can. Unl...

<t>I am writing as a mom of JR ROBI, he is 3 years old we are scheduled for an eval and surgery 9 and 11 Dec at TCH. Will anyone else be there at the same time? This will be JR's first surgery. We are Americans but live in Germany. I felt very very isolated here until I found UBPN a few months ago. ...

<t>What a wonderful thing to do! I am embarassed to say all I accomplished was to explain my son's condition to a few teachers. I also made a few medical staff aware that there was a BPI awareness week and support network. What your daughter did shadows what I as the mother have failed to do as yet....