Search found 14 matches

by Sue_Em'smom
Sun May 28, 2006 6:09 pm
Forum: Parents of OBPI Children
Topic: Cold Laser Acupuncture/Homeopathy for BPI?
Replies: 4
Views: 1471

Re: Cold Laser Acupuncture/Homeopathy for BPI?

<t>Dear Guest,<br/> I would also urge you to see a specialist in the field of brachial plexus injuries. There is a great deal that can be done for your child, but you must be extremely careful when using unproven alternative treatments.<br/> Hopefully, you can check the resource page and find a doct...
by Sue_Em'smom
Wed Mar 01, 2006 9:19 am
Forum: Parents of OBPI Children
Topic: anyone have problems from mod quad?
Replies: 36
Views: 3662

Re: anyone have problems from mod quad?

<r>My daughter had the mod quad when she was 13. Her surgery was on the right - the only function she lost was the ability to do the pledge of allegiance. (Touch her right hand to left chest. She can get withing about 4 inches.She says this bothers her when she needs to scratch her left shoulder or ...
by Sue_Em'smom
Tue Nov 16, 2004 9:18 pm
Forum: Parents of OBPI Children
Topic: Our visit to Shriner's at Philly with Dr. Kozin
Replies: 5
Views: 472

Re: Our visit to Shriner's at Philly with Dr. Kozin

<t>We, too, were very impressed by the staff and facilities at Shriner's hospital at first. Our child was even photographed and our permission given for her image to be used in Shriner's promotional material and at a conference on Disabilities in which Dr. Kozin participated. The last words Dr. Kozi...
by Sue_Em'smom
Thu Jul 15, 2004 9:12 pm
Forum: Parents of OBPI Children
Topic: I'm new with an 8 week old baby boy
Replies: 25
Views: 3435

Re: I'm new with an 8 week old baby boy

<r>Jennie,<br/> I have a 17 year old daughter, Emily, who has a ROBPI. I can remember feeling exactly as you did - and I want to tell you it WILL get better. The crying is so hard! All I can tell you is, in spite of the pain, these kids grow up to be strong, sensitive and extra-special people. Find ...
by Sue_Em'smom
Wed Apr 14, 2004 8:06 am
Forum: Parents of OBPI Children
Topic: Shoulder/elbow pain in 12-year-old daughter
Replies: 9
Views: 896

Re: Shoulder/elbow pain in 12-year-old daughter

Colleen,
We had similar issues with Emily around that age, and she is now 17 years old. I have emailed you.
Please feel free to contact me.

Sue
by Sue_Em'smom
Fri May 23, 2003 8:46 pm
Forum: Parents of OBPI Children
Topic: Strange thoughts
Replies: 12
Views: 977

Re: Strange thoughts

<t>Our Emily (ROBPI) was the middle child, but 5 years later, when Abby came along, it was so strange to dress a child who did not have a floppy arm! To see the shoulder straps stay up, to be able to pick her up normally, to feel her support herself steadily as I held her,to watch her run without be...
by Sue_Em'smom
Wed May 14, 2003 8:23 pm
Forum: Parents of OBPI Children
Topic: Elbow bends when arm goes up
Replies: 7
Views: 531

Elbow bends when arm goes up

<t>Emily's Physical therapist commented that she wished "there was something that could be done" to prevent Emily's arm from bending at the elbow as she raises it over her head. Is this an issue that is correctable? How? Her elbow is not bent normally, in typical BPI fashion, nor does she usually ho...
by Sue_Em'smom
Tue Dec 10, 2002 9:36 am
Forum: Adult and Young Adult OBPI
Topic: Looking for Teens who have had or are considering surgery
Replies: 9
Views: 1306

Re: Looking for Teens who have had or are considering surgery

<r>Hi Marion-<br/> My daughter Emily is 16 and had the mod quad surgery at age 13. Would be glad to answer any questions I can - please email me at <EMAIL email="gondalunch@enter.net">gondalunch@enter.net</EMAIL>. And welcome to the boards. You will find great connections and lots of support here.<b...
by Sue_Em'smom
Wed Nov 13, 2002 3:55 pm
Forum: Parents of OBPI Children
Topic: Can someone help Mia, has ?'s about her 14 year old son
Replies: 4
Views: 819

Re: Can someone help Mia, has ?'s about her 14 year old son

Jennifer,
I emailed Mia.
I hope she will get in touch with me.
Sue
by Sue_Em'smom
Fri Nov 08, 2002 11:25 pm
Forum: Parents of OBPI Children
Topic: All mod quads followed by caps?
Replies: 29
Views: 3199

Re: All mod quads followed by caps?

<t>Also- we tend to use "mod-quad" as a catch-all for all secondary surgeries, and I believe even within these surgeries there are many differences. Some children need more or less work than others - Emily needed releases and lengthenings but not tendon transfers - she was 13 at the time, has not ha...