My son is due to have an MRI on Nov.5 and that will determine exactly what type of surgery we will be having on Nov.13. My baby will have to be sedated for both and is not able to eat four hours prior of arrival. I was hoping to get some advice on how parents prepared for procedures and recovery. An...

Hello, My name is Cindi and I am new to the site. I live in Maryland and was wondering if anyone knows of any support groups in the area or if anyone living in Maryland would like to start a support group. I think it would really help my boyfriend and I to talk to other parents in person who have go...

Thank you to everyone for all of the advice and support. I am the mom this post was written about. Just to give a quick update we have a fantastic team at the Kennedy Kreager institute that is connected to Johns Hopkins. Cam has been improving but we will have an MRI done in November. We are thankfu...