We have been using e-stim (Empi-300PV TENS machine) with my son (ROPBI) for about 6 months. He had primary nerve transfer at 3 months (Oct. 2011) and another surgery (Sept 2012) to clean up scar tissue that was interfering with the bicep transfer. We can get great extension of the wrist and fingers ...

Having a problem searching the forums for info so I figured I'd just ask. We have been using e-stim on my son (ROBPI) for about 6 months without much luck getting his bicep to respond. Our home therapist through Early Intervention has suggested trying a different machine. Right now we are using an E...

My son Luke has robpi. Avulsion of c5, c6 and t1. Stretching of c7 and c8. He had primary nerve surgery at 3 months. We are now 9 months post surgery and he still has no bicep flexing function. His doc mentioned at his last appt that he may want to try another nerve surgery to see if he can redo the...

I don't know about uv protective pads but you can get clothing that has 50+ uv protection. Just google uv protective clothing and a bunch of sites come up. My son didn't have any nerves harvested from his legs so we don't have to worry about that part of his body. We just have to make sure his chest...

My son is almost a year old (8 months post primary surgery). He has extensive scarring from the surgery and we were just told about a product named Topigel. It's a silicone pad that your child can wear at night while sleeping. We have been using it for a couple of months now and it has helped my son...