I am 19 with LOBPI within the past few years I have noticed my symptoms have began to worsen (severe back pain, arm weakening, loss of energy, worse scapulae winging). Has anyone has anyone had any surgery to fix the winged scapula? I live in SW Florida and every neurologist sends me to another neur...

I live in sarasota county but travel to st.Pete and Tampa often. I have Lobpi I am 19 and I would love to talk to some others with this condition. I would love to meet up with someone to get an understanding of this whole thing.

I am new to the forum and new to BPI knowledge. If I have posted this in the wrong area I am sorry. Well here's my story maybe who ever reads this won't think I'm crazy like the doctors do. I was born in 1992 in a birthing center then they measured the baby's head but not there shoulders. Well my mo...