Hi! My daughter (now 2yrs) had a nerve transfer last May at 14 months of age. Prior to her surgery she sounds a lot like your son... We noticed great improvement after the surgery! She can now reach over her head with a mainly straight arm! I'm not sure about the pain question b/c she has never expr...

Hi all! Our newly 2 yr old daughter, Anne Michael (ROBPI) had a follow up last week with her BP specialist and we are wanting to bounce some ideas off of our BP friends :) . Anne Michael had a nerve transfer May 2012 and has made progress..she is now able to reach above her head past shoulder height...

Thank you for the information! I have tried most of your suggestions, but hadn't been turning her head at night. We will definitely be doing that!!! I positioned her on a pillow so she's sleeping a little toward the side instead of flat on the back of her head. When did your kids heads round out??

Our 4 month old daughter (right OBPI) had a pediatrician appointment today and she noticed her head is flat. I've noticed this too and have tried some positional changes when she's sleeping or in her swing. She does prefer to look to the left side. Tummy time isn't a great thing for her since she ca...

I'm new to this too. Our daughter was born in February and was diagnosed immediately following delivery....her injury was very obvious. We've been going to bi-weekly OT since she was 10 days old. We are also seeing the BP team at Cincinnati Children's Hospital. They are wonderful and we really like ...

Hi! I'm looking for any support groups in Alabama or surrounding areas. Thanks