Search found 27 matches

by RaisingCropsandBabys
Thu Aug 30, 2012 4:58 pm
Forum: Parents of OBPI Children
Topic: 6 Week Old With Brachial Plexus Injury
Replies: 27
Views: 15212

Re: 6 Week Old With Brachial Plexus Injury

Personally, I would avoid the sedation thus avoid that list of risks and go with the other hospital for the EMG testing. That is just me though. It was uncomfortable for JC, but not wish-he-was-sedated-painful (just my opinion...). -Sending you a message. :)
by RaisingCropsandBabys
Thu Aug 30, 2012 4:21 pm
Forum: Parents of OBPI Children
Topic: 6 Week Old With Brachial Plexus Injury
Replies: 27
Views: 15212

Re: 6 Week Old With Brachial Plexus Injury

Did they say why they are sedating her? And secondly, if they insist on sedating baby girl, really be insistant about having it scheduled first thing in the morning... the office is less likely to be behind in appts. so early and so that way baby girl will have less time without milk. I know many pl...
by RaisingCropsandBabys
Wed Aug 29, 2012 2:55 pm
Forum: Parents of OBPI Children
Topic: 6 Week Old With Brachial Plexus Injury
Replies: 27
Views: 15212

Re: 6 Week Old With Brachial Plexus Injury

Tuckersmommy- Is he still in the brace then? JC had the muscle/tendon surgery at 19 mos. old and what I loved about it is that we saw some results right after we took off the brace for the first time! It still took a few years of strengthening/retraining (via a few rounds of modified constraint ther...
by RaisingCropsandBabys
Sat Aug 25, 2012 8:51 am
Forum: Parents of OBPI Children
Topic: 6 Week Old With Brachial Plexus Injury
Replies: 27
Views: 15212

Re: 6 Week Old With Brachial Plexus Injury

((big hugs)). Playing the waiting game is hard. I always thought myself a patient woman, but after I had my son, it was like learning patience infinity! 5 yrs. later and we still play a bit of the waiting game. Hang in there, Mama. Has your baby had an EMG yet? Here was the timeline when my son (now...
by RaisingCropsandBabys
Thu Aug 02, 2012 9:10 pm
Forum: Parents of OBPI Children
Topic: Wii
Replies: 1
Views: 1756

Re: Wii

We have the Wii Mario Cart racing game for my 5 year old. It forces him to use both hands together on the Wheel... he has to supinate and because it's repetitive, it provides some strengthening. He also gets excited and when he's supposed to jump over ramps, he raises the wheel with both arms up by ...
by RaisingCropsandBabys
Wed Aug 01, 2012 5:09 pm
Forum: Parents of OBPI Children
Topic: New to the site; seeking advice . . .
Replies: 21
Views: 9265

Re: New to the site; seeking advice . . .

((big hugs)). When kids have Horner's and Diaphragm issues it can point to a more serious brachial plexus injury. I would look up a Brachial Plexus Center in your area and have your sister call them. Many will do self-referrals if the hospitals are being pokey. Be there for your sis. Ask her how she...
by RaisingCropsandBabys
Fri Apr 20, 2012 7:42 am
Forum: Parents of OBPI Children
Topic: MRI results
Replies: 2
Views: 1822

Re: MRI results

My son had the muscle transfer/tendon releases at 19 mos. old. He was so limited in his range of motion due to tightness that it wasn't even an option in our minds to have it done. He had the nerve surgery done as an infant and knowing that we were not getting the full effect of that surgery because...
by RaisingCropsandBabys
Wed Apr 11, 2012 11:00 am
Forum: Parents of OBPI Children
Topic: Just plain frustrated .....
Replies: 12
Views: 6654

Re: Just plain frustrated .....

I would talk to Dr. Grossman about your thoughts/concerns. He will probably recommend you get a second opinion at another BP Center (Cincy, Philly, Boston). BP doctors have no problem referring you to another respected and knowledgable care provider for second opinions. I urge you to definitely do y...
by RaisingCropsandBabys
Fri Mar 30, 2012 8:48 am
Forum: Parents of OBPI Children
Topic: Glenohumeral Dysplasia
Replies: 3
Views: 1513

Re: Glenohumeral Dysplasia

We had the muscle transfer/tendon releases surgery done when my son was 19 mos. old at Cincinnati Children's because x-rays started showing deformity and he was very limited in his ROM. It helped his ROM soooooooo much and was beyond worth it. We are still working on strengthening (it's been 3 years...
by RaisingCropsandBabys
Tue Feb 07, 2012 12:28 pm
Forum: Parents of OBPI Children
Topic: Robotic Rehablitiation
Replies: 4
Views: 1982

Re: Robotic Rehablitiation

Cincinnati Children's Hospital's Brachial Plexus Center has the exact same equipment and program there!!! The upper extremity one is used frequently with kiddos who have a brachial plexus injury. You can always contact them to ask more questions about their equipment and program. :) Very cool!