I sought care for myself at the age of 43 at the Brachial Plexus Injury Clinic at the Kennedy Krieger Institute in Baltimore (it is adjacent to Johns Hopkins). The team there was more than receptive to seeing me as an adult and devising an evaluation and therapy plan for the issues I had been having...

I am a 45 year old LOBPI who has practiced yoga for the past 10+ years. It was the impetus for me to get back into serious OT/rehab and work on the muscle stickiness, imbalance, altered kinematics and contractures that had happened in my adulthood while I was so busy living my life that I neglected ...

Welcome! I am a 45 yr old LOBPI and found this site about 3 years ago. Prior to that, I had only ever met one person with an injury similar to mine. Though I had tendon transfer surgery at age 6, I still have the usual Erb's Palsy limitations as my PT stopped a few years after my surgery. Through th...

I second the motion for kineseotaping. As part of my recent "rehab" (at age 44), one of the things that helped the most to alleviate the chronic lifelong upper trap/rhomboid pain I have on my affected side is taping my affected arm from my upper chest, around my upper arm, onto my back and...

Garrett- I have LOBPI/Erb's Palsy from birth and I am a board certified, practicing pediatrician. Happy to discuss medical training/life/parenthood with BPI. The thing I am most amused about is that I learned to take care of my BPI from this site and not anything I learned in medical school (1990-19...

I will be attending for first time: coming by myself from my family: 2 teen sons not interested and husband competing in triathlon that weekend elsewhere.....

Coming with a friend, who I met through this board, and her 4 year old affected daughter.
Sara

Dear Jedi2859, I have to say that the procedure you cite is way out of my league/knowledge base. In general, make sure the potential gains are worth the risks and that there is a strong rehab system in place to support you afterwards. Making new "muscle memory" and "undoing" comp...

Dear Mother of Maia- She absolutely can pursue medicine, though there will be challenges. I suppose that I ultimately became a pediatrician because I was on a quest to make children in difficult (health/body) situations feel heard and understood based on what I went through on the early part of my B...

Inspired by many of the stories I have read on this website, I decided to see a BPI team in near my home at the Kennedy Krieger Institute in Baltimore, Maryland. My intent was to get hooked up with the OT/PT that this facility had to offer and that is exactly what happened. I have met the most amazi...

Welcome John. I also have Erb's palsy since birth...43 yrs..... Hope Philly is a good common locale for Dr. E to come from Mayo. I live in the greater Baltimore area and would happily travel to Philly over MN! I find that my affected shoulder pulls forward and that I think this is from the relative ...