Hi Jenny! Yes, Josh has a facebook and a cell phone number. He will be excited to know that we heard from you :-). Hope all is well. Josh remember's Ben very well, he's the only kid he's connected with who has Erb's. Josh is in the 8th grade this year and plays percussion in his band as well. We tri...

Hi All! My son has a left OBPI - we discovered UBPN in 1998 and we went to camp in 2001 - Lake George, NY. What a great trip! Anyway, this site used to have a list of parents whose children have OBPI so they could connect. I haven't been following closely and the site has changed tremendously (looks...