We met Dr. Nath in Chicago recently. He was our second opinion. Since then I have taken my son to Dr. Kozin, who was excellent. We are traveling to MN to see Dr. Spinner at Mayo in two weeks for our fourth opinion, per request of his regular nuerosurgeon. I had a really bad "mommy gut" fee...

I just took my son to see Dr. Kozin less than a month ago. Have the childs regular dr or his BP specialist call Shriners and explain the childs need and urgency. They WILL get him in as soon as they can. I saw that someone posted about the RMH. We stayed there and it was amazing, as they all are! Pl...

As I sit here in utter frustration and will try to keep this post short. My son is 16 months old and has a global BPI on his left side, effecting c5-t1. My son had a nerve graft surgery a year ago this past September. He was hospitalized in January with pnuemonia and severe dehydration from that ill...

Hello. I must start by saying how refreshing it is to have found this site! So many others (unfortunately) just like us are affected by this devistating condition. My son Braylon is 13 months old. He suffers from BPI (klupkes palsy, erbs palsy and Horners syndrome,) all on his LEFT side. When he was...