Thank you for the info. Bickle wants us to stay on the medication for 2 more weeks and see if there is any improvement. I hadn't thought of protein bars. I'll add that to our snack list. Good luck on your upcoming appt. We really like Rinaldi and the OT/PT staff at CMH.


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HI DJ mom, yes we go to CMH in KCMO and see Rinaldi for BP and Bickel in neurology for headaches. Who did you see about your daughters heachaches? I agree it may have to do with lack of protiens and we need to watch the carbs, especially at breakfast. What will your daughter to eat to keep her proti...

Hi, I've seen old posts from 2010 about individuals w/headaches. I was wondering if there is any research out there about BP and headaches. The neurologist we see said Michael is the 1st BP kiddo she has seen. Which I found interesting. Is it because we don't report it to our BP physician, those in ...

That would be me. Teresa, holding my son Michael's hand ROBPI holding onto daddy's hand in hopes to make others, specificly pediatricians more aware..reaching out to the next.......

Hello we will also be at TCH the same week. We are staying at the Crowne Plaza, our 2nd time. It is right accross the street from the hospital. Cost is 89$, this is a discounted rate. Call 713-797-1110 and let them know your there for a BP surgery. They will give you the discount.

Hello, I'm one of the lurking mommies. My son is 7 months old and his right arm has OBPI and he has Horners. Initial surgery was not as promising as we had hoped. I like learning about my son's future through you stories.
Thanks,
Teresa