<t>A friend of mine just found out on Friday that her grandson has Horner's.<br/> Is there anyone out there with information that I can pass along. I'm glad we have info on our site but, I'm looking for a real person that has it and a mom/dad that has gone through the initial findings. <br/> THANK Y...

<t>Wow! Thank you Marieke, Rachel. and Amy!<br/> Can ya'll please answer some more questions?<br/> 1. What is this surgrey called? How do you ask a doctor about it? Where should I begin?<br/> 2. Do I just wait for my arm to get worse? Do MOST BPI related problems get worse with age? I've never meet ...

<r>I have ROBPI. I'm 39. I have great hand control(can almost rotate it all the way).<br/> I can lift my arm over my head. The only things I can not do are extend my arm or rotate it. Yes, so that makes my arm 3inches shorter than the other.<br/> I have had pain off and on for about six month. Massa...

<r>I have BPI in my right arm(since birth) and my shoulder and collar bone have been affected. My right collar bone does protrude more than my left one and my shoulder is also "rounded".<br/> It did seem to be more noticeable as I was growing up especially during the skinny, long legged stage. <br/>...