I agree with the other posters. Please get a 2nd opinion. My daughter got motion back in the fingers, hand and elbow before 8 months. Her biceps didn't get motion back until well after a year. We didn't see a BPI specialist until she was 5. Her shoulder was being pushed out of joint and neither her ...

Thanks Carolyn. I will pass the email onto Danielle. Hopefully they will connect this weekend. Dani is really interested in going to the next camp. We are determined to make it work out.

My daughter, Danielle (ropbi), is a soon to be 13 yr old. She would be interested in "meeting" other kids with Erb's too. She hasn't met other kids before. We were looking at the camp pictures and are interested in going next year. We are in NY and willing to exchange emails as well. - Dawn

Hi. We are also returning after a few years. My daughter Danielle is a soon to be 13 yr old with "unexplained" pain years after surgery. She had a humeral osteotomy Jan. 2005 with Dr. Waters. About 3 yrs ago she started having random pain in her shoulder and bicep area. All xrays and mri's...

Hi everyone, I haven't been here in quite awhile. Danielle had a ROBPI. When my daughter was 5 she had a humeral osteotomy done. Everything went well and she gained much more than she lost. Danielle has never felt any pain at all. When she was 10 Dani went on crutches for about 15 months (on and off...

Anyone have any recommendations on hotels near Boston Children's hospital? We usually stay at the Inn at Longwood but they are booked solid. thanks for your help.
- Dawn

Hi Krista, I haven't been to Waltham yet but I heard it's very nice. Good Luck and I hope Ella feels better soon. - Dawn

When Dani went to Boston it was for 1 3-D MRI. That was what the rx stated. We had it done right at the hospital so ther wouldn't be a problem.

<r>Hi All, my daughter Danielle,ROBPI, had the humeral osteotomy done by Dr. Waters Jan 20, 2005. Before surgery she was not able to get to neutral. When we had the 3-D MRI done Dr. Waters was shocked by the condition of Danielle's shoulder. From her movements he thought we would be able to have a t...

<t>Hey Krista, Danielle started SuBokDo Karate in June. She loves it. This is a no contact form of Korean Karate. I think it's great. They do 20 min. of stretching and cardio, then 30 min of Karate then a 10 min warm down. Most of the stretching she does is the same as what Michele in Boston told us...