I have not been on here for a long time. Our daughter has had remarkable recovery from her nerve transfer a year and a half ago, but now we are faced with decisions again. Frankly I am scared to death, and get angry every time we have to face things like this with her. She will be 3 this August. We ...

THIS IS AWESOME
I am going to begin to get in touch with my local radio stations

I too am so sorry to hear about your little angel. We too like you were very concerned about leaving our daughter with people that did not know how to care for her at the time. We were forunate to have family close by that was able to step in and help us when I had to go back to work. I remember the...

I will be saying a prayer for you today. We too take our daughter to see Dr. Kozin. We love him! He did nerve grafting surgery on our daughter last year in March. Keep in touch with me and let me know, feel free to email me anytime...
maranders@windstrem.net

Bumping this up for another BPI mother

<r>Ashley- I understand being a mother of a BPI child, all of the decisions that you are faced with doctors, surgeries and many more, only wanting for the best for your child. I know when my husband and I were looking for a BP specialist, we either met them or spoke with them and had to decide which...

GREAT! I voted also- I would love to see this topic discussed! Thank you- this is a great idea!

Great to hear from you! I am so glad to hear that there are other families close by. I will contact you both and see if we can put together some kind of support group for us in this area. I look forward to talking to you.

<r>Crystal,<br/> <br/> I agree with all of these parents, you are in the same place that we were a couple of months ago, I understand how you feel. Believe me when you meet or talk to these doctors you will just "Know" which one is right for your daughter.<br/> I agree with you to schedule an MRI an...

<t>Crystal,<br/> <br/> I too, like these others would recommend you getting a second opinion. Our daughter just turned a year old with a ROBPI- she had nothing, the term they used for her was a "total OBPI." We traveled to see Dr. Kozin in December, because all of the doctors here where we lived jus...