Hi All! Well I've been out of touch for a while. It's been a roller coaster for sure. My son Athany (ROBPI) is 6 years old and has had an “AR” & tendon transfer in 10/2009. He seemed to do great afterwards and has made tremendous gains. But recently, I've noticed that his right shoulder is comin...

I too feel the exact same way as others. Though it is truly hard to put into words (that is why I hardly post). Camp for us was incredible. And that is for every single one of us. Both Franky and I took more from camp then I ever thought possible. From therapy tips to the comforting words of others ...

I'M RINGING IN FOR AWARENESS!!!!!!!!!!!

Hope everyone has a amazing week spreading the word about these wonderful kids/Adults and the prevention of this injury to others! We've got our silver ribbons on!
****For all who went to camp please check your mailboxes this week.

Got it! Thanks. :0) I cant wait.

I'm having trouble registering. Can anyone help? I have a million questions. I want to book our flights. When is the best time to fly in & out so we don't miss anything? We are so excited I don't want to wait. What's the total cost for 4 people. Two kids- 9 & 5 years? What's the cost of the ...

<t>No I don't mind at all he had a release and a tendon transfer. Prior to surgery he was able to lift his arm to about mid chest if he arched his back and really didn't have much movement at all. We are two days out from cast removal and he can already flex upward. His arm is still really weak and ...

<t>I don't post much, I'm lay low more but I couldn't help myself after seeing his progress. Athany had his first surgery 4 weeks ago with Dr. Kozin in Philadelphia. I couldn't begin to explain the overwhelming emotion that I felt when I seen what he was able to do so far. Dr. Kozin and his staff ar...

Is anyone seeing Dr. Kozin this week?

Is anyone seeing Dr. Kozin this week?

<r>Even though you have a very long road ahead of you I must tell you that they are the most special little people in this world! I'm so happy you've found your way so quickly! Unfortunately I'm in the same boat as Torie! (Torie- if you don't mind I have some questions?? Can you email me so we can t...