Thankyou tsalata. I think just knowing there will be some options and hope does help. All I could see coming was it getting worse and worse.

My son had nerve graft surgery at 11mths this surgery appeared to work really well and we continued on with life so to speak without much of a backwards glance. The RCH (we are located in Victoria, Australia) were really happy with his progress and we haven't had to see them since around 2005 (surge...

thanks, received mine about 3 days ago, victoria, Australia

<t>my son had a little bit of trouble at first working out how to pull up and down his pants, but we put him in jocks that were a size too big and this made it easier, he somehow uses his good arm to pull them up by holding them in the middle and doing the front then the back.<br/> <br/> sometimes h...

<t>it is a good booklet, tis a pity though that us aussies who would benefit from it, were not informed of it.<br/> <br/> i also found it on the net, when i was looking for information as to see if my son who has not had physio for 2yrs(he is 4 and had a nerve graft at 1yr) was in need of more care....

<t>wow, thank-you all for the information, it is good in a way to see that this is normal, although i think that the doctors and physio here have been seriously lacking. I am from Aust and cameron had surgery at 1yr (nerve graft) since that time not much else has been done and we have been told that...

my son's shoulders are not level his bpi side drops, i was wondering if this is normal?

he is unable to wear overalls because the strap does not stay on but keeps dropping down, he also has some problems wearing a jacket undone.

can anyone help?

it is so great to read many inspirational messages, so many times i hear about surgery after surgery, and pain that i was becoming so worried. thankyou all

<t>kathleen thankyou for your reply i must admit we haven't done any rom exercises since he had his operation, the physio never gave us anymore to do and when i mentioned it i was told that there was no longer any need. He does use his arm when he needs to but just lets in hang at his side otherwise...

thankyou all so much it is so heartening to see that he will be able to continue on with not too many worries the idea of taking him out of P.E for his self esteem is a very good idea and one that will be kept in mind.