Candy, god bless you and I wish you a speedy and miraculous recovery. My daughter has ROBPI like Kathy was mentioning but still struggles with everyday issues ( backpacks for school as an example ). I wish this damn injury was gone for all of you.

Lenni

Hi everyone, it has been a long time since I have posted.......life gets busy when the kids get older and demand more computer time :shock: Great work on the website , WOW I love it, congratulations. I am writing today to ask about pain. Ashley feels very little pain her ROBI arm. Is this common? La...

Thank you for sharing this Francine.

Please tell Maia hello from Ashley.

Lenni

<t>All I can say is WOW! Ashley is almost 12 and at her last doc appointment Dr. Rielly recommended the HO. We are unsure of whether to do it or not. Ashley wants to do it so that is a start. ( She keloid scars badly is the downside) I love all the information you have all posted and will spend some...

Nothing here yet !

<t>My daughter is almost 12 now but I did manage to find her a bottle at walmart that she could hold. It was a odd shape kind of like the letter o stretched out and so there was a hole in the center and she was able to get her fingers through it. Sippy cups with handles were great for when she was o...

I am waiting patiently for mine..........it always takes a few weeks extra but I cannot wait to get it and read about camp, I am hoping Ashley and I can meet you all this year!

Lenni

<t>Hi all, Ashley just had her yearly appointment with her surgical team. She is now almost 12 years old and starting to develop. I had thought she may have scoliosis because her body looks twisted and you can only see her development on one side. Her surgeons feel she does not have scoliosis, that ...

WTG Maia !!!!! I am crying tears of joy! I am so excited and delighted to hear of your musical accomplishments! Good luck !

Lenni

Jennifer, you are in my prayers. I wish for you a speedy and complete recovery. May God bless you and yours.

Lenni