Search found 118 matches
- Mon Oct 08, 2007 5:57 pm
- Forum: Parents of OBPI Children
- Topic: ANOTHER susrgery was recommended
- Replies: 34
- Views: 6302
Re: ANOTHER surgery was recommended
<t>Paula,<br/> <br/> I too think of it as "cosmetic", but lately I am starting to think differently. I asked Dr. Hoffer if he thought it was cosmetic, and he said he would never do anything "cosmetic" to any child. It is one surgery that never sat well with me. It just may be "our last resort".<br/>...
- Thu Oct 04, 2007 3:10 pm
- Forum: Parents of OBPI Children
- Topic: ANOTHER susrgery was recommended
- Replies: 34
- Views: 6302
Re: ANOTHER surgery was recommended
<r>We saw Dr. Nath in August and he wants to RE-DO Alyssa's Triangle Tilt. She had the first one in May 2005 and lost all she gained from it. It just didn't sit well with me so I had a 2nd opinion with Dr. Hoffer about a week ago. He recommends we don't do anything at this time, and if anything in t...
- Mon Aug 13, 2007 11:57 pm
- Forum: Parents of OBPI Children
- Topic: ACR - Ideal time frame (Age)?
- Replies: 10
- Views: 1939
Re: ACR - Ideal time frame (Age)?
<t>Hi Kate,<br/> <br/> Thanks for the response. Sounds like you know what you are talking about, and why I am asking the question. I can see what you mean by it not reforming itself, and there is no assurance that it can or will. What in your "opinion" do you think an older child with a malformed sh...
- Mon Aug 13, 2007 11:12 am
- Forum: Parents of OBPI Children
- Topic: ACR - Ideal time frame (Age)?
- Replies: 10
- Views: 1939
ACR - Ideal time frame (Age)?
Hi,
What is the ideal time frame for a child to have the ACR (what age range)?
Thanks in advance!
Jody - mom to Alyssa (9) LOBPI
What is the ideal time frame for a child to have the ACR (what age range)?
Thanks in advance!
Jody - mom to Alyssa (9) LOBPI
- Wed May 30, 2007 11:16 am
- Forum: Parents of OBPI Children
- Topic: Great fundraising idea!
- Replies: 0
- Views: 943
Great fundraising idea!
<r>I found this on the internet lastnight and we have already ordered ours! It is Sunkist and they are offering a free lemonade stand for kids 7 to 12, with your profits going to the charity of your choice (non-profit). We chose UBPN and explained to them the reason why (to help educate doctors etc....
- Tue May 15, 2007 3:37 pm
- Forum: Parents of OBPI Children
- Topic: Head shape at birth?
- Replies: 11
- Views: 1852
Re: Head shape at birth?
Alyssa was definetely cone shaped - she even had a bruise on the side of her face!
Jody
Jody
- Mon May 07, 2007 11:46 am
- Forum: Parents of OBPI Children
- Topic: Anyone from california
- Replies: 5
- Views: 977
Re: Anyone from california
<r>Hi,<br/> <br/> I am in California - in the Los Angeles area. We take part in the SCBPN's (Southern California Brachial Plexus Network) annual picnic's in the San Diego area and they have a very large support group. Their website is <URL url="http://www.scbpn.com">www.scbpn.com</URL>. What part of...
- Wed Feb 21, 2007 1:59 pm
- Forum: Parents of OBPI Children
- Topic: SARO Brace - use with TT regression
- Replies: 2
- Views: 1676
SARO Brace - use with TT regression
Hello,
I am trying to find anyone that has decided to try and use the SARO brace after the TT and after regression from the TT. I am in the process of ordering the brace and was looking for any feedback.
Thanks,
Jody - mom to Alyssa (9) LOBPI
I am trying to find anyone that has decided to try and use the SARO brace after the TT and after regression from the TT. I am in the process of ordering the brace and was looking for any feedback.
Thanks,
Jody - mom to Alyssa (9) LOBPI
- Thu Feb 08, 2007 1:21 pm
- Forum: Parents of OBPI Children
- Topic: any of the kids roller skate?
- Replies: 8
- Views: 1617
Re: any of the kids roller skate?
<r>Hi,<br/> <br/> My daughter (9)LOBPI just recently learned to skate and is doing great! She was a bit nervous (as was I), but we took a couple classes at our local rink and she is getting better and better each week! I think your son should do just fine - maybe another parent/child who will be ska...
- Thu Jan 11, 2007 1:27 pm
- Forum: Parents of OBPI Children
- Topic: Just had to share...Alyssa's report at school
- Replies: 4
- Views: 933
Just had to share...Alyssa's report at school
<t>Hi,<br/> <br/> I just wanted to share something with everyone..<br/> <br/> Alyssa's class (4th grade) is currently learning about medicine in our society. Alyssa came home lastnight and wanted to do a report on her BPI for extra credit. We went through all of our pictures from her surgeries and s...