<t>My son who is 2 1/2 years old has always had his fingers and wrist clenched but in the last year or so he extends his pointer finger and is constantly putting small toys in is hand to hold. He also wears a splint at night for his thumb to extend. <br/> <br/> Its slow but progress and its asking u...

Neala is her name. It means Little Champion

Maria

You know I thought of that too! I also wrote once into Oprah about BPI. Trying to bring awareness but didn't hear anything. We should try again!!!

Maria
Mother to Amaru ROBPI

<t>It has been quite a while since I have posted. My son, Amaru, is going to be 2 next month. He just became a big brother. I had my daughter Aug 25th via c-section at a completely different hospital then the one he was born. The experience was very surreal, especially because two little arms and fi...

<t>Well he doesn't really seem to have much. I mean his finger stretch and twitch and his wrist is not always in the relaxed position. Theres potential he just refuses to use it. Like I said he can grasp items but he either grabs it with his left hand or releases by bringing his hand up in supine an...

<t>Hi everyone,<br/> <br/> I just had our 3 month meeting with our OT and Early Intervention casemanager and as we looked at his goals from the last time, Amaru unfortunately did not reach them. I need some help. Currently Amaru's biggest problem is that he does not use his hand. He refuses to hold ...

Thank you. I wouldn't know what to do without this board sometimes.

Maria

<t>Hi everyone,<br/> <br/> Its been a while since I have posted. I always try to stop by and read what;s going on. There are so many things going on that I am truly exhausted. First, Amaru is just getting bigger by the day. We saw his doctor recently and decided against any surgerys. He seems to be ...

Thanks for your statements. My son is only one but I know that one day he will ask me and I was trying to do something special for him. Thanks again

Maria

<t>If you could have a children's book that helped you explain your child's injury to your child, what would you like it to say? I am thinking a book for a child up to the age of 8 or 9. I am in the process of writing one for my son. Any help would be great.<br/> <br/> Maria<br/> Amaru's mom 1 year ...