I'm so glad you received so many responses. I look forward to hearing from you and sharing tips and advice! ) Kelley

<r>Your situation sounds similar to my daughters. She is 6 with LBPI and never had surgery (until 3 months ago) but has always been fairly functional. I kept asking doctors throughout the years if any surgery was available and all they would tell me was to keep up the physical therapy. I finally sou...

<r>Hi Leslie,<br/> <br/> Wow, your situation sounds EXACTLY like mine. My daughter is also 6 and had her last MRI when she was 6 months. Our plan was to try to not sedate her, but if she couldn't stay still, they would need to. (She has an extremely hard time sitting still.) They ended up sedating h...

<t>Hi Helen,<br/> I noticed that you are seeing Dr. Pearl in LA. My daughter has a surgery scheduled with him Dec. 1st. This will be her first surgery, I am nervous! Just wondering if you guys have had any previous surgeries with him and how things went...or if you can offer any wisdom or advice. Th...

Best wishes for your family!

Awesome! Thank you so much for the info Marieke.

Carolyn, what is UBPN Gear? I just found this site today, and wasn't even aware that there was an awareness week for OBPI. I would like to get more involved, but have no idea where to start. Any help or suggestions would be great. Thank you!

<t>Hi everyone! My daughter will be 6 next month, and I know the questions of "why" are right around the corner. I'm not sure if I should start talking to her about it now, so she is prepared to answer questions from others, or should I wait until she brings it up? Any suggestions? Thanks to all...<...