Will anyone be seeing Dr. Kozin on Friday, October 7th? Our appointment for Trent (6.5 months old ROBPI)is @ 9:45. Just wondering if we would see anyone?
Anita

<t>We have been taping Trent's arm (6 months old ROBPI) for about a week. He has VERY sensative skin and there has been no problem getting it off. It stays on for 3 days and then off for 2 days. By the third day it is starting to come off on its own and we just pull it off. He has not had any proble...

<t>I was wondering if anyone has success with splitting and/or taping. Trent (5 months ROBPI) has regained most movement. From birth to 8 weeks of age he had only finger and wrist movement. He continues daily to increase his movements. Now his arm rests in neutral,which was not the case 5 months ago...

<t>Hey all- I have been out of touch for a while. It has been one crazy summer!! I have been an avid reader-just not a responder, nor have I had a lot of questions recently on the board. However, we are still here dealing with the whole BPI thing. Trent (ROBPI) now 5 month old has made some improvem...

That is wonderful news!! I know how happy you must be!!
Congrats and warm wishes-
Anita

<t>I agree with what everyone said- get a car. It is not the best part of town, but you will be fine. I wouldn't say it looks worse than it is, b/c it is a pretty tough section. There are tons of people around and when you park at the hospital you don't have to pay and you never leave the building f...

<t>We saw Dr. Kozin and his team for the first time last week. (Monday, July 11th) It was the most wonderful experience we have had through this whole journey. Trent is 4 month old with ROBP. He has damage to C5 and C6. He gets more movement each day. He goes back on Sept. 9th for his next progress ...

We go on September 9th. Have you been to see him yet?
Anita

I saw it too!! They never said it was BPI. From the looks of it- it probably was to some extent.
Anita

<t>When Trent (4 months old with ROBPI)was born he had finger and wrist movement. That was all. His arm and sholder were competely limp. Begining at about 6 weeks of age until now there has been noticable progress. He can now lift his arm to 90 degrees against gravity- not fully extended, and can ge...