Would you mind to share the information about the clinic? I had no idea there was an upcoming event. Which doctor's will be attending? Thanks.

My son had his 5th surgery in October 2013. Since the day of surgery he complained of his left pinky finger feeling numb and tingly. When we returned for his 4 week follow up and cast removal, his pinky finger was drawing in a bent position and has been that way since. He is unable to straighten his...

Does anyone see the BP doctors at Vanderbilt Children's in Nashville? What are your experiences and thoughts? Any information appreciated. I don't know anyone who has been to their clinic and our insurance is making our son be evaluated by them prior to letting us see his out of state specialist. I'...

Corinne, I sent you a private message.

Nicholas' visit went well. He is scheduled for surgery in June. I am so glad that we were able to see Dr. Waters.

Is anyone going to see Dr. Waters in March? My son has an appointment and I thought it would be a good chance to connect with another family.

We are from TN. Feel free to email me if you would like to. We don't know many families from TN. We look forward to hearing from you. :0)

My son Nicholas has a LOBPI. Unfortunately, he is in a small percentage of children whose surgeries did not help his injury. His left arm still has no muscle tone and hangs flacid. I feel that it is unfortunate that once your child is no longer a candidate for surgical intervention that doctors do n...

I will be keeping you all in my thoughts and prayers. My son had the gracilis muscles transfer to his biceps in 2004 at Children's Hospital Boston. I hope all goes well and that your little one has a speedy recovery.

I understand your feelings completely. I thought once things were settled life would kind of pick up and move on. I have actually realized that the problems are still there. Unfortunately, they won't go away. I have found that it's kind of like going through different stages of reality. Especially a...